Soooooooo,
I went and saw my doctor the other day and told him of my pain increase and my migraine frequency and pain level increase. He decided to put me on a new migraine medication. It works pretty well. It makes me sleep for a couple hours almost immediately after I take it but then I feel pretty fantastic. Not that I can magically walk again or anything like that but more so more functional (not laying in bed as much). This may be because the pills contain serotonin which is as some call it a "happy/wellness chemical" Anyways the pain free effect seems to last just about 24ish hours which is nice. My doctor also increased the frequency in which I take my nerve pain pills as well (neurotin).
So how have I been?
To be blunt quite miserable. A lot of pain off and on (hince the doctor visit), dizziness, breathing issues, and been weak and stiff. I've also been quite busy lately. Debating on planning a youth Halloween event or not. As I told my doctor I try to do as much as I can while I can. I have also have been finding my self nodding and smiling my way through things.
More recently ( pass 24 hours) I haven't been doing that great either heh...I spent part of the day laying down unable to get up out of bed which has really sucked. I also had some chest pains, dizziness, shortness of breath for a brief moment earlier. I took an aspirin and they eventually went away. I hope today/tomorrow is better.
Now for some what more on the treatment of the disabled; something I touched on once before.
I want to ask those who read this, what do they see what is the first thing they think of when they see a disabled person? If you don't mind please comment on this post your honest answer. I won't judge you or be upset. I would like to say this, I hope for a variety of honest answers.
So this was Chiari month. I am unsure if Missouri had any fund raising events or not. I didn't hear any so I didn't post any info, I apologize if I missed any.
So yea life has been hard this month but I think life is hard for everyone at some point or another. Also when I said life has been hard for me I in no way mean to say my life is worse than anyone else. I believe that topic like that is somewhat relative to an individual and to said individual's own situation. Something can feel like the worse thing ever to one person and not to another, that by no means belittles another person's situation. Not that I think everything in the world is relative but this yes...
Anyways time to get kids ready for school.
Dustin
Tuesday, September 24, 2013
Monday, September 9, 2013
A Couple Things
Thing One:
It is Chiari Awareness Month. That means certain websites will be giving information on Chiari.
http://www.conquerchiari.org/index.html
Chiari awareness month color is purple. I thought of changing the website's color scheme etc but I am far to lazy to do so.
Now that the Awareness Month announcement is out of the way. I have been doing alright I suppose. I've been having some dizzy issues as well as some breathing issues. Nerve pain has been pretty fail as well. I get by though. I've also been having some odd pain in my left hand.
Pass the month or so has been pretty busy. We have had a family reunion which was alright, I wished more people would of showed up.
Potty training Anah has been a fun experience I suppose. I also haven't been too useful with the kids lately due to not feeling the greatest. Been in bed quite a bit the pass month. Pain levels have been high enough to cause me to pass out from time to time. I've also been blind a couple times this month. When I say blind I mean that with my eyes open all I see is painful light due to my eyes not adjusting properly. Thus extreme headache + light or keeping eyes closes for a few hours till things get better. It has been annoying. I've also been tired lately, mostly due to the pain.
With all of that said I have started playing a new game the pass couple weeks. It has been fun but it has been hard for me to play due to coordination issues etc. I should be maxed level by now but I am not :/
Well that is all for now
It is Chiari Awareness Month. That means certain websites will be giving information on Chiari.
http://www.conquerchiari.org/index.html
Chiari awareness month color is purple. I thought of changing the website's color scheme etc but I am far to lazy to do so.
Now that the Awareness Month announcement is out of the way. I have been doing alright I suppose. I've been having some dizzy issues as well as some breathing issues. Nerve pain has been pretty fail as well. I get by though. I've also been having some odd pain in my left hand.
Pass the month or so has been pretty busy. We have had a family reunion which was alright, I wished more people would of showed up.
Potty training Anah has been a fun experience I suppose. I also haven't been too useful with the kids lately due to not feeling the greatest. Been in bed quite a bit the pass month. Pain levels have been high enough to cause me to pass out from time to time. I've also been blind a couple times this month. When I say blind I mean that with my eyes open all I see is painful light due to my eyes not adjusting properly. Thus extreme headache + light or keeping eyes closes for a few hours till things get better. It has been annoying. I've also been tired lately, mostly due to the pain.
With all of that said I have started playing a new game the pass couple weeks. It has been fun but it has been hard for me to play due to coordination issues etc. I should be maxed level by now but I am not :/
Well that is all for now
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